A Journey of Weakness…

Posts Tagged ‘prednisone

New Information

Posted by: Admin on: March 24, 2009

It’s been quite a while since I posted anything. We’ve had a few changes. She came close to 3 months off the prednisone, when the joint aches became too much. Muscle weakness was creeping back into the picture. She has started to lose alot of hair also.
On 3/19 she saw a rheumatologist for the first [...]

The Lumbar Puncture

Posted by: Admin on: November 19, 2008

Today is the lumbar puncture with the neuromuscular doctor. When all is said and done my daughter confesses that she had some slight discomfort, but announced that the procedure was much better than the second muscle biopsy. We spoke with the doctor prior to the procedure, and my daughter had a quick physical exam. Her strength has improved, [...]

Muscle Biopsy #2

Posted by: Admin on: November 13, 2008

It’s the first of October, and the second muscle biopsy is performed. My daughter states that this biopsy was much more painful than the first. Three large samples were collected and we expect the preliminary results to return in 10-14 days.  The doctor says that the blood work done last week was normal, and he [...]

Echocardiogram

Posted by: Admin on: November 7, 2008

It’s Friday and there will be two appointments today; one for an echocardiogram and one for the primary physician. We arrive at the hospital and go to the basement floor. The echo lab seems enormous, but once checked in, my daughter, my husband and I find a small out of the way corner to sit in. I’m not sure why we [...]