A Journey of Weakness…

Posts Tagged ‘neuromuscular

Follow-Up Phone Calls And A Neurology Visit

Posted by: Admin on: November 7, 2008

About four days later, the primary doctor’s office called and said the echo was normal. The day after the neuromuscular doctor would call. The newest blood work showed a normal thyroid TSH T3 and T4, but suggested keeping any appointment with an endocrinologist, when we were able to get one. There was a slight elevation in [...]

The Start Of A Busy Week

Posted by: Admin on: October 31, 2008

Monday brought the first of three visits to receive IV steroids. I thought 60mg a day was alot, but the 1000 mg x 3 days was unbelievable. Blood was also drawn for serum immuno-fixation (cancer screen) My daughter completed the IV steroids and then continued the 60mg tablets. At night she would start taking benedryl to sleep; prednisone often [...]

Neurology Visit #2 And The Speech Pathologist

Posted by: Admin on: October 27, 2008

Finally, we had another visit with the neurologist. During the physical exam he ran all his tests again, and still felt this was muscular in nature. The biopsy was two weeks ago, and we were hoping for some answers, unfortunately, he couldn’t give us anything definitive. It appeared that the biopsy of her left leg was “suggestive” of [...]