A Journey of Weakness…

Posts Tagged ‘muscle

The Lumbar Puncture

Posted by: Admin on: November 19, 2008

Today is the lumbar puncture with the neuromuscular doctor. When all is said and done my daughter confesses that she had some slight discomfort, but announced that the procedure was much better than the second muscle biopsy. We spoke with the doctor prior to the procedure, and my daughter had a quick physical exam. Her strength has improved, [...]

IVig Begins…? Myopathy

Posted by: Admin on: November 18, 2008

IVig treatments begin and she will have five visits. She seemed to tolerate everything pretty well. During the treatments she only had a couple of minor headaches, but nothing a little medicine didn’t take away. The second day of the treatments, the neuromuscular doctor stopped in to speak with us. He told my daughter that he [...]

Perhaps The Start Of A Plan?

Posted by: Admin on: November 13, 2008

It’s the end of September now and we have arrived for the next neuromuscular appointment. The doctor begins the appointment by giving his report to my daughter on the MRI which was normal and the last batch of blood work, also normal. He tests her arm and leg strength and notices a definite improvement. Since her muscles (mostly in her [...]

Echocardiogram

Posted by: Admin on: November 7, 2008

It’s Friday and there will be two appointments today; one for an echocardiogram and one for the primary physician. We arrive at the hospital and go to the basement floor. The echo lab seems enormous, but once checked in, my daughter, my husband and I find a small out of the way corner to sit in. I’m not sure why we [...]

The Neuromuscular Appointment

Posted by: Admin on: November 2, 2008

We were asked to arrive 1 1/2 hours earlier than the appointment, they wanted to do a few tests before the actual appointment with the physician. Unfortunately, when we arrived, we found that ”the tests” would be  another muscle and nerve study (EMG/NCS) ). My daughter began to get ready for the doctor; the amount of time [...]

A Hospital Stay?

Posted by: Admin on: October 29, 2008

The primary care doctor opens the door to the small room we are all waiting in; this is the first time she has seen my daughter since the referral to the neurologist. We review what has been happening over the last week and the doctor begins to focus on the report from the speech pathologist. The [...]

The Neurologist…

Posted by: Admin on: October 19, 2008

Mid-July, finally the day came to see the neurologist. This Doctor spent about 2 hours with my daughter; in my eyes that was pretty amazing. He gave her a very complete physical exam, and felt that this was more muscular in nature. At the end of the visit he said that he would order a EMG (Electromyogram) and more [...]

So The Journey Begins….

Posted by: Admin on: October 12, 2008

Early last January my college aged daughter came down with something she thought was similar to the flu or a virus. She really had no idea and, of course, didn’t make a trip to the Doctor. At this time she was staying with her Dad, the holiday break was winding down, and the time to come back to stay with me and begin [...]