A Journey of Weakness…

Posts Tagged ‘biopsy

The Lumbar Puncture

Posted by: Admin on: November 19, 2008

Today is the lumbar puncture with the neuromuscular doctor. When all is said and done my daughter confesses that she had some slight discomfort, but announced that the procedure was much better than the second muscle biopsy. We spoke with the doctor prior to the procedure, and my daughter had a quick physical exam. Her strength has improved, [...]

IVig Begins…? Myopathy

Posted by: Admin on: November 18, 2008

IVig treatments begin and she will have five visits. She seemed to tolerate everything pretty well. During the treatments she only had a couple of minor headaches, but nothing a little medicine didn’t take away. The second day of the treatments, the neuromuscular doctor stopped in to speak with us. He told my daughter that he [...]

Muscle Biopsy #2

Posted by: Admin on: November 13, 2008

It’s the first of October, and the second muscle biopsy is performed. My daughter states that this biopsy was much more painful than the first. Three large samples were collected and we expect the preliminary results to return in 10-14 days.  The doctor says that the blood work done last week was normal, and he [...]

Perhaps The Start Of A Plan?

Posted by: Admin on: November 13, 2008

It’s the end of September now and we have arrived for the next neuromuscular appointment. The doctor begins the appointment by giving his report to my daughter on the MRI which was normal and the last batch of blood work, also normal. He tests her arm and leg strength and notices a definite improvement. Since her muscles (mostly in her [...]

Follow-Up Phone Calls And A Neurology Visit

Posted by: Admin on: November 7, 2008

About four days later, the primary doctor’s office called and said the echo was normal. The day after the neuromuscular doctor would call. The newest blood work showed a normal thyroid TSH T3 and T4, but suggested keeping any appointment with an endocrinologist, when we were able to get one. There was a slight elevation in [...]

The Neuromuscular Appointment

Posted by: Admin on: November 2, 2008

We were asked to arrive 1 1/2 hours earlier than the appointment, they wanted to do a few tests before the actual appointment with the physician. Unfortunately, when we arrived, we found that ”the tests” would be  another muscle and nerve study (EMG/NCS) ). My daughter began to get ready for the doctor; the amount of time [...]

The Neurologist…

Posted by: Admin on: October 19, 2008

Mid-July, finally the day came to see the neurologist. This Doctor spent about 2 hours with my daughter; in my eyes that was pretty amazing. He gave her a very complete physical exam, and felt that this was more muscular in nature. At the end of the visit he said that he would order a EMG (Electromyogram) and more [...]