Archive for the ‘Uncategorized’ Category
New Information
Posted by: Admin on: March 24, 2009
It’s been quite a while since I posted anything. We’ve had a few changes. She came close to 3 months off the prednisone, when the joint aches became too much. Muscle weakness was creeping back into the picture. She has started to lose alot of hair also.
On 3/19 she saw a rheumatologist for the first [...]
A Short Update
Posted by: Admin on: December 28, 2008
Over a month has passed since my last post. On Wednesday she will finish her last dose of prednisone (yah!).
Her only complaint seems to be that she is exhausted, so we’ll keep an eye on that since it was one of her first original complaints last January.
She is climbing the stairs again, even though she [...]
Unless There’s A Complete Turn Around….
Posted by: Admin on: November 19, 2008
Another quick visit to the primary care dr., unbelievable it’s been a month already, since our last visit. My daughter is still unable to get out of a chair, like any other person would, and she still is unable to use the stairs. The doctor places a note in her chart, out of work through February, [...]
IVig Begins…? Myopathy
Posted by: Admin on: November 18, 2008
IVig treatments begin and she will have five visits. She seemed to tolerate everything pretty well. During the treatments she only had a couple of minor headaches, but nothing a little medicine didn’t take away. The second day of the treatments, the neuromuscular doctor stopped in to speak with us. He told my daughter that he [...]
Flu and Pneumonia Shots
Posted by: Admin on: November 18, 2008
A quick visit to the primary doctor and a flu and pneumonia shot are given. We are asked to have anyone that may come in contact with my daughter to have the flu shot.
Muscle Biopsy #2
Posted by: Admin on: November 13, 2008
It’s the first of October, and the second muscle biopsy is performed. My daughter states that this biopsy was much more painful than the first. Three large samples were collected and we expect the preliminary results to return in 10-14 days. The doctor says that the blood work done last week was normal, and he [...]
Perhaps The Start Of A Plan?
Posted by: Admin on: November 13, 2008
It’s the end of September now and we have arrived for the next neuromuscular appointment. The doctor begins the appointment by giving his report to my daughter on the MRI which was normal and the last batch of blood work, also normal. He tests her arm and leg strength and notices a definite improvement. Since her muscles (mostly in her [...]
The MRI
Posted by: Admin on: November 7, 2008
It’s mid-September. The [very lousy] insurance company gets around to approving the MRI and my daughter finally gets an appointment. We arrive for the evening appointment at the hospital. We don’t wait very long and it’s time to go back. My daughter takes me, to help her change, and the tech would take her back to [...]
