Posted by: Admin on: November 19, 2008
Another quick visit to the primary care dr., unbelievable it’s been a month already, since our last visit. My daughter is still unable to get out of a chair, like any other person would, and she still is unable to use the stairs. The doctor places a note in her chart, out of work through February, [...]
Posted by: Admin on: November 18, 2008
IVig treatments begin and she will have five visits. She seemed to tolerate everything pretty well. During the treatments she only had a couple of minor headaches, but nothing a little medicine didn’t take away. The second day of the treatments, the neuromuscular doctor stopped in to speak with us. He told my daughter that he [...]
Posted by: Admin on: November 18, 2008
A quick visit to the primary doctor and a flu and pneumonia shot are given. We are asked to have anyone that may come in contact with my daughter to have the flu shot.
Posted by: Admin on: November 13, 2008
It’s the first of October, and the second muscle biopsy is performed. My daughter states that this biopsy was much more painful than the first. Three large samples were collected and we expect the preliminary results to return in 10-14 days. The doctor says that the blood work done last week was normal, and he [...]
Posted by: Admin on: November 13, 2008
It’s the end of September now and we have arrived for the next neuromuscular appointment. The doctor begins the appointment by giving his report to my daughter on the MRI which was normal and the last batch of blood work, also normal. He tests her arm and leg strength and notices a definite improvement. Since her muscles (mostly in her [...]
Posted by: Admin on: November 7, 2008
It’s mid-September. The [very lousy] insurance company gets around to approving the MRI and my daughter finally gets an appointment. We arrive for the evening appointment at the hospital. We don’t wait very long and it’s time to go back. My daughter takes me, to help her change, and the tech would take her back to [...]
Posted by: Admin on: November 7, 2008
About four days later, the primary doctor’s office called and said the echo was normal. The day after the neuromuscular doctor would call. The newest blood work showed a normal thyroid TSH T3 and T4, but suggested keeping any appointment with an endocrinologist, when we were able to get one. There was a slight elevation in [...]
Posted by: Admin on: November 7, 2008
It’s Friday and there will be two appointments today; one for an echocardiogram and one for the primary physician. We arrive at the hospital and go to the basement floor. The echo lab seems enormous, but once checked in, my daughter, my husband and I find a small out of the way corner to sit in. I’m not sure why we [...]