A Journey of Weakness…

Archive for November 2008

The Lumbar Puncture

Posted by: Admin on: November 19, 2008

Today is the lumbar puncture with the neuromuscular doctor. When all is said and done my daughter confesses that she had some slight discomfort, but announced that the procedure was much better than the second muscle biopsy. We spoke with the doctor prior to the procedure, and my daughter had a quick physical exam. Her strength has improved, [...]

Unless There’s A Complete Turn Around….

Posted by: Admin on: November 19, 2008

Another quick visit to the primary care dr., unbelievable it’s been a month already, since our last visit. My daughter is still unable to get out of a chair, like any other person would, and she still is unable to use the stairs. The doctor places a note in her chart, out of work through February, [...]

Phone Call With An Update

Posted by: Admin on: November 19, 2008

It has been just alittle over a week since we spoke to the doctor during the second treatment. It’s Friday, and just about the end of the day. The telephone rings and it’s the neuromuscular doctor. He has decided on a diagnosis and it’s called AMAN, acute motor axonal neuropathy; it happens to be a variant of Guillian Barre [...]

IVig Begins…? Myopathy

Posted by: Admin on: November 18, 2008

IVig treatments begin and she will have five visits. She seemed to tolerate everything pretty well. During the treatments she only had a couple of minor headaches, but nothing a little medicine didn’t take away. The second day of the treatments, the neuromuscular doctor stopped in to speak with us. He told my daughter that he [...]

Flu and Pneumonia Shots

Posted by: Admin on: November 18, 2008

A quick visit to the primary doctor and a flu and pneumonia shot are given. We are asked to have anyone that may come in contact with my daughter to have the flu shot.

Muscle Biopsy #2

Posted by: Admin on: November 13, 2008

It’s the first of October, and the second muscle biopsy is performed. My daughter states that this biopsy was much more painful than the first. Three large samples were collected and we expect the preliminary results to return in 10-14 days.  The doctor says that the blood work done last week was normal, and he [...]

Perhaps The Start Of A Plan?

Posted by: Admin on: November 13, 2008

It’s the end of September now and we have arrived for the next neuromuscular appointment. The doctor begins the appointment by giving his report to my daughter on the MRI which was normal and the last batch of blood work, also normal. He tests her arm and leg strength and notices a definite improvement. Since her muscles (mostly in her [...]

The MRI

Posted by: Admin on: November 7, 2008

It’s mid-September. The [very lousy] insurance company gets around to approving the MRI and my daughter finally gets an appointment. We arrive for the evening appointment at the hospital.  We don’t wait very long and it’s time to go back. My daughter takes me, to help her change, and the tech would take her back to [...]

Follow-Up Phone Calls And A Neurology Visit

Posted by: Admin on: November 7, 2008

About four days later, the primary doctor’s office called and said the echo was normal. The day after the neuromuscular doctor would call. The newest blood work showed a normal thyroid TSH T3 and T4, but suggested keeping any appointment with an endocrinologist, when we were able to get one. There was a slight elevation in [...]

Echocardiogram

Posted by: Admin on: November 7, 2008

It’s Friday and there will be two appointments today; one for an echocardiogram and one for the primary physician. We arrive at the hospital and go to the basement floor. The echo lab seems enormous, but once checked in, my daughter, my husband and I find a small out of the way corner to sit in. I’m not sure why we [...]