A Journey of Weakness…

Archive for October 2008

The Start Of A Busy Week

Posted by: Admin on: October 31, 2008

Monday brought the first of three visits to receive IV steroids. I thought 60mg a day was alot, but the 1000 mg x 3 days was unbelievable. Blood was also drawn for serum immuno-fixation (cancer screen) My daughter completed the IV steroids and then continued the 60mg tablets. At night she would start taking benedryl to sleep; prednisone often [...]

A Hospital Stay?

Posted by: Admin on: October 29, 2008

The primary care doctor opens the door to the small room we are all waiting in; this is the first time she has seen my daughter since the referral to the neurologist. We review what has been happening over the last week and the doctor begins to focus on the report from the speech pathologist. The [...]

Neurology Visit #2 And The Speech Pathologist

Posted by: Admin on: October 27, 2008

Finally, we had another visit with the neurologist. During the physical exam he ran all his tests again, and still felt this was muscular in nature. The biopsy was two weeks ago, and we were hoping for some answers, unfortunately, he couldn’t give us anything definitive. It appeared that the biopsy of her left leg was “suggestive” of [...]

Things Were Getting Serious

Posted by: Admin on: October 26, 2008

Monday would bring a trip to the after hours clinic and a diagnosis of a UTI. On Tuesday, the neurologist called and told her she was positive for lupus on a general test. Finally, the Thursday appointment with the primary care physician arrived. We would see the PA since our doctor was out of the office. It took my daughter nearly 10 [...]

Everything Kicked Into High Gear

Posted by: Admin on: October 23, 2008

The ambulance started oxygen as they took my daughter to the hospital. A co-worker left her job to follow the ambulance and stay with my daughter until I was able to arrive. My daughter and I appreciate that enormous gesture so very much! The emergency room had her settled in and bloodwork performed by the time I arrived. Soon a [...]

The Neurologist…

Posted by: Admin on: October 19, 2008

Mid-July, finally the day came to see the neurologist. This Doctor spent about 2 hours with my daughter; in my eyes that was pretty amazing. He gave her a very complete physical exam, and felt that this was more muscular in nature. At the end of the visit he said that he would order a EMG (Electromyogram) and more [...]

Our Next Steps

Posted by: Admin on: October 14, 2008

The follow-up with the Doctor never happened. She was unable to get in to see the physician until late March. Many days after classes, she would nap for several hours or she would just stay in bed on the days classes weren’t held. It started to become harder to climb the stairs. You could just look [...]

So The Journey Begins….

Posted by: Admin on: October 12, 2008

Early last January my college aged daughter came down with something she thought was similar to the flu or a virus. She really had no idea and, of course, didn’t make a trip to the Doctor. At this time she was staying with her Dad, the holiday break was winding down, and the time to come back to stay with me and begin [...]